HubHip: Health: Conditions and Diseases: Musculoskeletal Disorders: Congenital Anomalies: Craniosynostosis (16)

Support Groups (2)

Craniosynostosis

Alexander Foundation (Site) - Non-profit charitable institution that supports the funding and research of Kleeblattschadel Deformity, or cloverleaf syndrome, a type of craniosynostosis in which there is premature closure of bones of the skull.
Craniosynostosis (Site) - Article from the American Family Physician.
Craniosynostosis (Site) - Information sheet compiled by National Institute of Neurological Disorders and Stroke.
Craniosynostosis (Site) - Article from eMedicine.
Devin's Craniosynostosis (Site) - Devin was born with a condition called Craniosynostosis (Sagittal Synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada.
World Craniofacial Foundation (Site) - Provides assistance for those in need of treatment.
Michal's Story (Site) - English and Hebrew information on craniosynostosis based on the personal case of Michal Glanz from Israel.
Brynne and Craniosynostosis (Site) - Personal experiences of a family and a child born with craniosynstosis.
Sagittal Synostosis Homepage (Site) - Information (including details of genetic research) and support for people affected by this condition.
FACES: The National Craniofacial Association (Site) - Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders.
Asher's Craniosynostosis Home Page (Site) - Describes a family's experience with CS. Includes information and links about the condition and its treatment.
Craniosynostosis, Endoscopic Strip Craniectomy (Site) - Information on surgical procedures.
Cranio Online (Site) - For parents of children born with cranial deformities. Includes support group and FAQ. [English and German]
Craniosynostosis (Site) - Causes, pictures, and long term consequences.
Plagiocephaly Information Web (Site) - Information on the diagnosis and correction of abnormal head shape.
Craniosynostosis (Site) - Definition, description, diagnosis, treatment and support. Includes photos of patients and illustrations of the cranial sutures involved in this condition.