HubHip: Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Marfan Syndrome (25)

   Marfan Syndrome

• Living With Marfans (Site) - This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
• MFS Type 1 Fibrillin Gene (Site) - Major resources listed as well as genetic information.
• National Marfan Foundation (Site) - Providing accurate and timely information about the disorder to patients, family members and physicians.
• Polish Marfan Association (Site) - General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
• Canadian Marfan Association (Site) - Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
• Marfan Association UK (Site) - The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
• Life and Issues of Marfan's Syndrome (Site) - Personal site by which describes the pathology and gives a bit of advice.
• Marfan Support and Information (Site) - Support group in New South Wales, Australia.
• American Heart Association - Marfan's Syndrome (Site) - Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
• Swedish Marfan Association (Site) - Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
• International Federation of Marfan Syndrome Organizations (Site) - A global information center providing links to Organizations around the world.
• Slovak Marfan Association (Site) - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
• Univ. of Washington - Marfan Syndrome (Site) - What the disease is and includes the impacts on daily life.
• Marfan Syndrome (Site) - Article from eMedicine.
• Marfan Syndrome (Site) - A Question-Answer format page of information.
• Marfan Syndrome (Site) - A guide to this connective tissue disease.
• Marfan Syndrome Forum (Site) - Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
• Marfans Research Foundation (Site) - Irish charity with information on fund raising activities and the condition.
• South African Marfan Syndrome Organisation (Site) - Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
• Marfan Syndrome: Does Diet Play a Role (Site) - Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
• Questions and Answers about Marfan Syndrome (Site) - From the National Institutes of Health.
• The Mystery of Akhenaten: Genetics or Aesthetics? (Site) - A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
• Marfan-List (Site) - Information about an e-mail mailing list. Also includes links to other online support groups.
• A Diary about Marfan's (Site) - Marfan's patients diary of the diseases events in her life. Includes a list of links.
• Marfan Syndrome (Site) - Online chapter from The Merck Manual of Medical Information.