Gorham's Disease or Massive Osteolysis (Site) - Supporting those affected by this rare condition. From the AFAS Association. Available in English, French, and Spanish.
Jake Moore Memorial Site (Site) - Personal page about a young man who had vanishing bone disease. Offers a support forum.
The Lymphangiomatosis Foundation (Site) - Organization working on finding a cure for lymphangiomatosis and Gorham's disease through research, fundraising, and education.