HubHip: Health: Conditions and Diseases: Neurological Disorders: Muscle Diseases: Muscular Dystrophies: Support Groups: Chats and Forums (13)

   Chats and Forums

• Limb Girdle Muscular Dystrophy (Site) - Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
• Christians With Duchenne Muscular Dystrophy (Site) - Mailing list for Christians who have Duchenne Muscular Dystrophy.
• Myotonic Dystrophy 2 (Site) - Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
• DMD Support List (Site) - Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
• Muscle Disease (Site) - Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.
• Duchenne Muscular Dystrophy Support eGroup (Site) - International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
• MD-List (Site) - Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
• Dysferlin (Site) - Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
• MDA All the Way (Site) - Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
• FSH Friends Forum (Site) - Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
• The Muscular Dystrophy Forum (Site) - An online support group for people affected by any neuromuscular condition.
• FSH Muscular Dystrophy (Site) - Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
• PROMM (Proximal Myotonic Myopathy) (Site) - Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.