HubHip: Health: Conditions and Diseases: Neurological Disorders: Muscle Diseases: Myopathies (12)

   Myopathies

• Periodic Paralyses (Site) - Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
• Advancement of Research for Myopathies (Site) - A non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM). Includes a message board.
• Neuromuscular Disease Center (Site) - Review of various muscle, nerve and neuromuscular disorders; links to relevant sites.
• Myopathy (Site) - Information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
• Centronuclear & Myotubular Myopathy (Site) - British information point for sufferers and their families of these disorders and associated muscle abnormalities.
• Multicore Myopathy (Site) - Offers an informational and support site for all myopathies.
• Myopathy and neuromuscular junction disorders (Site) - Detailed information on some of the muscle diseases.
• NINDS: Inclusion Body Myositis (Site) - Also known as inflammatory myopathy, an information sheet compiled by National Institute of Neurological Disorders and Stroke.
• Rhabdomyolysis (Site) - Information about the medical condition rhabdomyolysis, complete with tables, pictures, and diagrams.
• Familial Desminopathy (Site) - Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe.
• Nemaline Myopathy (Site) - Information and contacts regarding Nemaline Myopathy
• Myotubular Myopathy Resource Group (Site) - Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories.