HubHip: Health: Conditions and Diseases: Neurological Disorders: Muscle Diseases: Spinal Muscular Atrophy (17)

   Spinal Muscular Atrophy

• Jennifer Trust for Spinal Muscular Atrophy (Site) - Providing support, information and research news for UK families.
• Families of SMA (Spinal Muscular Atrophy) (Site) - International support group and resource center for this disease, includes current research.
• The Sean W. Venezia Foundation (Site) - Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
• SMA2 Ian Paul (Site) - I am two years old and I have SMA2.
• Our SMA Angels (Site) - Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
• Ilsa's SMA Resources (Site) - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
• FightSMA (Site) - Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
• GeneClinics SMA Information Page (Site) - Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
• SMA Angels Support Site (Site) - A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
• Washington University of St. Louis: Neuromuscular (Site) - Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
• Spinal Muscular Atrophy Foundation (Site) - Information on SMA, and the latest updates in research, treatment and funding.
• Theo's Story with SMA (Site) - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
• SMA Support Inc. (Site) - A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
• Families of Spinal Muscular Atrophy Canada (Site) - Canadian charity supports research into a cure for SMA.
• Tori's Buddies (Site) - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
• Elizabeth's Page (Site) - Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
• Twins with SMA (Site) - Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.