Friedreich's Ataxia
- Friedreichs Ataxia Society Ireland (Site) - Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
- Matt's Mansion (Site) - Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
- CajunHeart (Site) - Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
- Friedreich's Ataxia Parents Group (Site) - With advice for new parents on the disease, and on how the parent might better cope emotionally.
- NORD: Friedreich's Ataxia (Site) - Offers the synonyms, a general discussion and further resources.
- GeneClinics: Friedreich Ataxia (Site) - An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
- Friedreich's Ataxia and I (Site) - The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs.
- Friedreich's Ataxia Research Alliance (Site) - Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.
- Swiss Association of Friedreich Ataxia (Site) - Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
- Friedreich's Ataxia Fact Sheet (Site) - A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Friedreich Ataxia Research Association (Site) - Summarises recent progress in ataxia research and the search for better treatment.
- Not Going Quietly (Site) - A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
- Friedreichs Ataxia Society Ireland (Site) - Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
- Matt's Mansion (Site) - Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
- CajunHeart (Site) - Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
- Friedreich's Ataxia Parents Group (Site) - With advice for new parents on the disease, and on how the parent might better cope emotionally.
- NORD: Friedreich's Ataxia (Site) - Offers the synonyms, a general discussion and further resources.
- GeneClinics: Friedreich Ataxia (Site) - An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
- Friedreich's Ataxia and I (Site) - The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs.
- Friedreich's Ataxia Research Alliance (Site) - Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.
- Swiss Association of Friedreich Ataxia (Site) - Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
- Friedreich's Ataxia Fact Sheet (Site) - A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Friedreich Ataxia Research Association (Site) - Summarises recent progress in ataxia research and the search for better treatment.
- Not Going Quietly (Site) - A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
- How therapy can improve the quality of life. More on therapy Why do some people have Friedreichs Ataxia More on genetics Go to (Image) - genetics2.jpg
- More on therapy Why do some people have Friedreichs Ataxia More on genetics Go to NEWS to read the latest on what drugs are being trialled and research that is taking place. (Image) - genetics1.jpg
- New Book Released by Xlibris Features InDepth Information About Neurological DisordersNew Book Proves That ... (News) - NEW HAVEN, Conn., Sept. 29, 2008 -- People who suffer from health disorders are often treated as outcasts by society, often feared and even discriminated against. As such, the need to educate the public and help them understand the plight of sufferers simply cannot be ignored.
- These documents are covered under copyright and may not be reproduced but are posted here for your reference. How therapy can improve the quality of life. More on therapy Why do some people have Friedreichs Ataxia (Image) - therapy2.jpg
- Cody, 15, addresses Lib Dem conference (News) - A DISABLED teenager from Trowbridge challenged a group of MPs at the Liberal Democrat conference last week about rights and opportunities for young people just like her.
- Bittersweet F.A. The Sequel to Sweet F.A. The Autobiography of Alun Peredur Who Suffers from Friedreichs Ataxia, an Inherited Disease (Books) - Only
- cs.cmu.eduafscs.cmu.eduuseralavieBabylonIFWordNetprologltbgt...ltbgt (Site) - ... jam-packed packed " ) ( 112706029 " hemoglobin haemoglobin Hb " ) ( 302907521 " ... ( 302851390 " myelinic " ) ( 301511929 " unmotivated " ) ( 108615172 " ...
- disease area often are related to other diseases. I will discuss two areas of research, Friedreichs ataxia and pain, as examples of research areas that further illustrate these points. Friedreichs Ataxia The story of Friedreichs ataxia illustrates how many areas of clinical and basic research can come together in unexpected ways. In this rare disorder, research (Image) - ataxia.jpg
- CoQ.sub.10 and vitamin E slow progression of some aspects of Friedreichs ataxia while reversing others.ABSTRACTS OF INTEREST An article from Original Internist (Books) - Only
- The way I would describe Friedreichs Ataxia , is that your body is set on a self destruct course. I feel like I have been fighting a daily (Image) - MECOL.jpg
- The Official Parents Sourcebook on Friedreichs Ataxia A Revised and Updated Directory for the Internet Age (Books) - Only
- Patient loses right-to-food fight () - The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
- Friedreichs ataxia An entry from Thomson Gales iGale Encyclopedia of Childrens Health Infancy through Adolescencei (Books) - Only
- Cardiomyopathy in Friedreichs ataxia With studies of cardiovascular and respiratory function Acta paediatrica. Supplement (Books) - Only
- Gale Encyclopedia of Medicine Friedreichs ataxia (Books) - Only
- National Institute of Neurological Disorders and Stroke NINDS Director Story Landis, in her remarks opening the conference, said there is a palpable sense of energy, excitement, and (Image) - ifarc_2006-11-10_a.jpg
- Friedreich ataxia An entry from Thomson Gales iGale Encyclopedia of Genetic Disorders, 2nd ed.i (Books) - Only
- Interstitial fibrosis Friedreichs ataxia There are many causes of interstitial fibrosis. It is seen in the presence of hypertrophy whether primary or secondary. This was a case of Friedreichs ataxia, known to be (Image) - 61.jpg
- Friedreich Ataxia A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers (Books) - Only
- What Is Friedreichs Ataxia (Image) - hearttext.jpg
- Friedreich ataxia An entry from Thomson Gales iGale Encyclopedia of Neurological Disordersi (Books) - Only
- A MERSEYSIDE woman will today become the first person in the world to undergo stem cell therapy in the hope of a cure from a rare disease.Angela McDonald, 32, has taken a trip to a Dutch (Image) - 000ADB92-4E5A-136B-82490C02AC1BF824.jpg
- The Hereditary Ataxias and Related Disorders Clinical Neurology and Neurosurgery Monographs, Volume 6 (Books) - Only
- cell-culture-34290.jpg (Image) - cell-culture-34290.jpg
Last update: 2008-05-06 13:32:13 Friedreich's Ataxia | Copyright 2008 HubHip.com