HubHip - Tourette Syndrome

Description

Tourette syndrome (TS) is an inherited disorder of the nervous system characterized by repeated involuntary movements and uncontrollable vocal (phonic) sounds called tics. In a few patients, such tics can include inappropriate words and phrases.

The disorder is named for Dr. Georges Gilles de la Tourette, a French neurologist who first described an 86-year-old French noblewoman with the condition in 1885. The symptoms of TS generally appear before the individual is 18 years old (some authorities say before 15 years of age).

Source: MedicineNet, Inc.

Tourette Syndrome

Life's A Twitch (Site) - A clinical psychologist with the disorder presents his educational writings, talks, and a documentary. Includes sections for patients, families and clinicians.

The Facts About Tourette Syndrome (Site) - Basic information about Tourette's Syndrome. Includes a list of symptoms classified as either simple or complex.

Tic Talk (Site) - Email groups for adults, kids, and teens with TS as well as for parents of TS children. Also has links to books and sites dedicated to TS.

Tourette Syndrome in Children (Site) - KeepKidsHealthy.com provides basic information about common symptoms.

Tourette Syndrome - One Day at a Time (Site) - Basic information about Tourette Syndrome, myths, educational tips, diagnostic guidelines, and one family's personal story of how they take it One Day at a Time.

National Organization for Rare Disorders (NORD) - Tourette Syndrome (Site) - Provides information, referrals to patient organizations, research grants and fellowships, advocacy, and medication assistance programs.

Tourette Syndrome - Now What? (Site) - Information about the optimistic prognosis for most persons newly-diagnosed with TS. Provides articles, FAQs, definitions, and tips on finding a doctor, as well as a message board.

KidsHealth: Tourette Syndrome (Site) - Information about the symptoms of TS and how to get help for children.

Neuroscience for Kids - Tourette Syndrome (Site) - Provides definition, descriptions, facts, a list of famous people with TS, a short quiz, and resources.

Tourette Syndrome Online (Site) - An interactive community for anyone interested in TS and related disorders. Offers articles, FAQs, personal stories, chat rooms, message boards, "Doctor Finder," news, research findings, online store, a newsletter, resources, and a scholarship fund.

EEG Biofeedback Training for Tourette Syndrome (Site) - Disorder Brief provided by EEG Spectrum. Clinical observations on the effectiveness of EEG biofeedback training as an adjunct modality for remediating the symptoms of Tourette syndrome.

Tourette Syndrome Plus (Site) - Information and resources on TS, OCD, ADD, and other neurobehavioral disorders. Special sections on advocacy and parent education, conferences, glossaries, medications, camps, and media coverage of TS.

Planet Tic (Site) - Resources for students, parents, and teachers. Includes “ask an expert” bulletin boards, classroom strategies, educational games, and videos. [English and Spanish]

KidsHealth: What is Tourettes Syndrome (Site) - A teen's guide to TS, who gets it, what doctors do, and how to manage living with the condition.

National Institute of Neurological Disorders and Stroke: Tourette Syndrome Fact Sheet (Site) - Includes definitions, possible causes, treatments, and research.

Tourette Syndrome Support in the UK (Site) - Providing information about services and support for TS in the UK. Includes Discussion Forum and Chat Room.

The Tic (Site) - A resource for those affected by Tourette's Disorder. Features information about the condition, treatment options, and tips for living with it from day to day.

Tourettaville (Site) - Musical inspired by a young boy's dream world where 4 aliens and guru of “Tourettians” promote self-acceptance to patients with Tourette Syndrome.

The Tourette Syndrome Guide (Site) - Provides answers to basic questions regarding symptoms, diagnosis, and treatment of Tourette Syndrome.

Giles de la Tourette Syndrome (Site) - Computational Neuroscientist Bruce E. Shapiro, Ph.D. who suffers from Tourette Syndrome, provides research charts and support for the disorder.

Tic and Twitch (Site) - A different look at Tourette Syndrome Plus. Stories for children, family, friends and helpers.

We Move - Tourette Syndrome (Site) - Walk-through fact sheet on Tourette Syndrome.

Online Clinic: Tourette Syndrome (Site) - Abstracts of research papers dealing with the diagnosis, treatment, prevention, outcome, and educational management of Tourette Syndrome.

Tourette's Disorder (Site) - American and European descriptions with links to diagnosis and treatment information, booklets, research, and magazine articles. From Internet Mental Health.

HubHip: Health: Conditions and Diseases: Neurological Disorders: Tourette Syndrome (56)

Tourette Syndrome