HubHip: Health: Support Groups: Conditions and Diseases: Genetic Disorders (27)

Down Syndrome (26)
Beckwith-Wiedemann Syndrome (2)

Genetic Disorders

Chromosome Deletion Outreach, Inc. (CDO) (Site) - Non-profit voluntary support group for families affected by rare chromosome disorders.
Alliance of Genetic Support Groups (Site) - National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
Chromosome Help-Station (Site) - Information on rare chromosomal disorders. Support and advice for families.
Trisomy 18 Moms (Site) - Lists Trisomy 18, Edwards syndrome memorial site, help making a website, and share a story.
Online Genetic Syndrome Support Groups (Site) - Sites are listed alphabetically by disease/condition.
S.O.F.T. (Site) - A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
Chromosome 22 Central (Site) - Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and malformations.
Unique Rare Chromosome Disorder Support Group (Site) - Support and information for families of children with rare disorders.
Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities (Site) - The Philadelphia, PA., Internetsupport For invisible/hidden disabilities.
S.O.F.T. (Site) - Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
Thomas Scott Davidson (Site) - This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
Cornelia de Lange Syndrome (CdLS) Foundation Outreach (Site) - Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
Parents of Polydactyly and Webbed Children (Site) - A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others
Ideas (Site) - A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
Forum for Patients with Myotonic Dystrophy 2 (Site) - A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
Yahoo Groups Floating Harbor (Site) - An active support site for the parents and families of children with Floating Harbor Syndrome.
Oto-Palatal-Digital Syndrome Family Resource Network (Site) - Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome.
Yahoo Support Group for CMT-HMSN-HNPP (Site) - A very active support group that prides itself on helping its members through the good - bad days and posting the latest CMT/HMSN/HNPP research information available on the web.
Trisomy 18 Angel (Site) - This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.
Peter's Anomaly Support Group (Site) - An online support group for people dealing with Peter's Anomaly.
Trisomy 18 Support Online Community (Site) - Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
Lafora body disease research talk (Site) - This is a discussion group about lafora body disease.
X-Linked Alpha Thalassemia M/R Syndrome (Site) - Features a Yahoo! group for family support for individuals caring for others affected by "Alpha Thalassemia Mental Retardation Syndrome (ATR-X).
Distal Trisomy 10q Families (Site) - Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
The Rainbow (Site) - A forum for people who have chromosome abnormalites to show support, give advice and comfort.
Who is EPI ? (Site) - The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.
GendersInX.org (Site) - Support and encouragement for people with congenital gender variations.

Chromosome Deletion Outreach, Inc. (CDO) (Site) - Non-profit voluntary support group for families affected by rare chromosome disorders.
Alliance of Genetic Support Groups (Site) - National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
Chromosome Help-Station (Site) - Information on rare chromosomal disorders. Support and advice for families.
Trisomy 18 Moms (Site) - Lists Trisomy 18, Edwards syndrome memorial site, help making a website, and share a story.
Online Genetic Syndrome Support Groups (Site) - Sites are listed alphabetically by disease/condition.
S.O.F.T. (Site) - A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
Chromosome 22 Central (Site) - Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and malformations.
Unique Rare Chromosome Disorder Support Group (Site) - Support and information for families of children with rare disorders.
Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities (Site) - The Philadelphia, PA., Internetsupport For invisible/hidden disabilities.
S.O.F.T. (Site) - Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
Thomas Scott Davidson (Site) - This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
Cornelia de Lange Syndrome (CdLS) Foundation Outreach (Site) - Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
Parents of Polydactyly and Webbed Children (Site) - A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others
Ideas (Site) - A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
Forum for Patients with Myotonic Dystrophy 2 (Site) - A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
Yahoo Groups Floating Harbor (Site) - An active support site for the parents and families of children with Floating Harbor Syndrome.
Oto-Palatal-Digital Syndrome Family Resource Network (Site) - Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome.
Yahoo Support Group for CMT-HMSN-HNPP (Site) - A very active support group that prides itself on helping its members through the good - bad days and posting the latest CMT/HMSN/HNPP research information available on the web.
Trisomy 18 Angel (Site) - This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.
Peter's Anomaly Support Group (Site) - An online support group for people dealing with Peter's Anomaly.
Trisomy 18 Support Online Community (Site) - Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
Lafora body disease research talk (Site) - This is a discussion group about lafora body disease.
X-Linked Alpha Thalassemia M/R Syndrome (Site) - Features a Yahoo! group for family support for individuals caring for others affected by "Alpha Thalassemia Mental Retardation Syndrome (ATR-X).
Distal Trisomy 10q Families (Site) - Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
The Rainbow (Site) - A forum for people who have chromosome abnormalites to show support, give advice and comfort.
Who is EPI ? (Site) - The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.
GendersInX.org (Site) - Support and encouragement for people with congenital gender variations.
Your Genes, Your Health The DNA Learning Centers multimedia guide to genetic disorders. Complete in depth articles about each disease listed. (Image) - image.pxf
Patella (Post) - Health/Conditions_and_Diseases/Genetic_Disorders/Nail__Syndrome/MetaEUREKA metasearch - Search at once more than 40 search engines, and get a freeware toolbar with 20 usefull tools! FractureInformation about a patella Fracture ...
The normal distribution of body iron stores People with the abnormal genes do not reduce their absorption of (Image) - Iron_metabolism.png
costello syndrome (Post) - www.dmoz.org/Health/Conditions_and_Diseases/ Genetic_Disorders/Costello_Syndrome/ - 8k - Сохранено в кэше - Похожие страницы Costello Syndrome - [ Перевести эту страницу ]Costello syndrome is an extremely rare disorder that affects ...
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The American Society of Human Genetics ASHG (Site) - Professional membership organization for human geneticists in the Americas, including: researchers, academicians, clinicians, laboratory practice professionals, genetic counselors, and nurses.
Preventive Health Care for Children with Genetic Conditions Providing a Primary Care Medical Home (Books) - Only
Open Directory Health Conditions and Diseases Genetic Disorders (Site) -
ELIJAHdotNET Pictures of Elijah at various ages, with links to information on Down Syndrome. (Image) - image.pxf
Health ampgt ConditionsandDiseases ampgt GeneticDisorders Jasminecorp ... (Site) - Search Health Conditions and Diseases Genetic Disorders in Amazon ... http://www.ctds.info/genetic_disorders.html. Reviews Rating: Not yet Rated Whois Check ...
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Reference.comWeb DirectoryTopHealthConditionsandDiseases ... (Site) - Free online Web directory. ... Articles on Communication - How parents can teach their children with Down ... Down Syndrome - A listing of organizations ...
Cystic Fibrosis Center (Post) - ScienceDaily -- Browse Topics: Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis ... Test what you know about cystic fibrosis. Cystic Fibrosis Health FactSheet - Concise factsheet on causes ... Acrobat format. ...
Reference.comWeb DirectoryTopHealthConditionsandDiseases ... (Site) - Free online Web directory. ... Top " Health " Conditions and Diseases " Genetic Disorders " Prader-Willi Syndrome ... Inside Latham Centers - A residential ...
Eat Fat, Be Healthy Understanding the HeartStopper Gene and When a LowFat Diet Can Kill You (Books) - Only
Open Directory HealthConditions and DiseasesGenetic DisordersDown ... (Site) - Top: Health: Conditions_and_Diseases: Genetic_Disorders: Down_Syndrome. History of Down Syndrome ... In 1866, a physician named John Langdon Down first ...
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NetQuantum ODP Live HealthConditionsandDiseasesGeneticDisorders ... (Site) - NetQuantum :: Health :: Conditions_and_Diseases :: Genetic_Disorders :: Prader-Willi_Syndrome : ... Health: Conditions and Diseases: Neurological Disorders: ...
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FindMyHealth Medical Directory ConditionsandDiseases ... (Site) - AlltheWeb.com: Web results for ""weaver+syndrome" ... google.com/Top/Health/Conditions_and_Diseases/Genetic_Disorders/Weaver_Synd rome ...
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FindMyHealth Medical Directory ConditionsandDiseases ... (Site) - AlltheWeb.com: Web results for ""urea+cycle" ... http://directory.google.com/Top/Health/Conditions_and_Diseases/Genetic_Diso rders/Urea_Cycle ...
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School District 117 (Site) - http://dmoz.org/Health/Conditions_and_Diseases/Genetic_Disorders ... http://directory.google.com/Top/Health/Conditions_and_Diseases/Genetic_Diso rders ...
Wiki GeneticDisorders20ConditionsandDiseases (Wiki) -